While an individual disease might be labeled as “rare”, the total number of persons in Europe suffering from identified rare diseases is large.
Finding effective treatment for a patient with one of the 6,000 rare diseases can be very difficult.
Rare Disease Day
The 16th international Rare Disease Day is on the 28th of February, 2023. Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Rare Disease Day was launched by EURORDIS –Rare Diseases Europe and its Council of National Alliances in 2008. On and around this day, hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities.
The statistics speak for themselves: more than 300 million patients, families and carers make up the rare disease community worldwide with Over 6,000 different diseases.
EffRx supports Eurordis, the organizer of Rare Disease Day, in making the voice of rare diseases heard.
To get involved, visit rarediseaseday.org to find an event near you or to download communication materials.